Being a Heart mom is by far one of the hardest yet most rewarding things I ever had to take on. It comes with lots of challenges, restless nights, long hospital stays, countless doctors appointments and never ending worry. Somedays I just sit and think about all the what if’s, what if his heart just stops, what if I put him to sleep one day and he never wakes up, or what if he’s doing so good right now and tomorrow it just all goes down hill, what if his next surgery isn’t his last and the list goes on and on.

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